The hidden predicament of ‘too sick to work; too ‘undiagnosable’ to get any assistance.’

.”What if they don’t find anything?”
That’s all I have been thinking about after having about eight or so vials of blood drawn yesterday. I’m so used to being told, “Everything looks good,” that I have already started to mentally prepare myself for that possibility. Insomnia came in handy this time because I happened to see this blog through a Facebook post. I do agree that years of stress can physically break you down, so if my test results come back saying that nothing was found, I will assume that I have a bad case of Raggedy Life Disease.

New Shoots

girl

Woe betide the person who develops a chronic health condition that has no name and which doesn’t show up on conventional health tests. You are about the enter a hellish realm of being seen as a lazy, antisocial, hypochondriac – and thats just what your doctor thinks of you. Your friends and family will become tired of you and your one subject conversation and you’ll start to not bother mentioning it; which will further cement the notion in everybody’s heads that you are making it all up and in reality you are living it up on the couch at home watching YouTube videos all day while they’re all out paying taxes.

View original post 901 more words

Closer to an answer

Well, my rheumatology visit went very well. She was very nice and attentive. I told her about the symptoms I have been having throughout my adult life, and in addition to the test results that were sent to her, I brought the results from the previous GP I was seeing in 2016. Based on her analysis of both results, she wanted to do her own bloodwork to determine if I had Sjogren’s since the positive ANA on the most recent test (75% accuracy) was so low (1.1 out of a normal range of 0.0-0.9). The test done from the previous doctor (95% accuracy) did not give a positive ANA, but as we know, one can be seronegative and still have Sjogren’s.
 
She also said that the dry eyes, dry mouth, etc., could be caused from the antidepressants I have been taking over the years, and though I have joint pain and fatigue, I don’t have other symptoms she usually sees such as hair loss, rashes, etc., and I have osteoarthritis instead of an inflammatory type of arthritis. She made sure to say that none of this doesn’t necessarily mean that I DON’T have Sjogren’s, so I appreciated that she kept an open mind.
 
Instead of sending my blood samples to a local lab, she’s sending it to the Mayo Clinic for a full autoimmune panel. YES! Even if it is Sjogren’s, isn’t Sjogren’s, or is something else that I haven’t even thought of, at least I can finally find out. Now that’s what you call a REAL DOCTOR!
giphy
She even asked me twice if I ever saw a rheumatologist before, and I told her no. I guess she was surprised.
 
I will see her again in four weeks, and before I left, she gave me a shot in my right hip for pain. I have been having pain in both hips which she diagnosed as bursitis. I will have the left hip done when I go back.
 
It feels good to be getting closer to an answer. I have also considered the possibility that thy may not find anything and I’ll have to start over with a different specialist, but at least I’ll be finally narrowing my choices down. Regardless of the conclusion after the lab results, at least I can stop wondering what in the world is going on with me.